Latest in ALS

Grammy-winning singer Roberta Flack, whose work in classics like “The First Time Ever I Saw Your Face” and “Killing Me Softly with His Song” has been described as “rapturous, spellbinding mood music,” announced today through a representative that she has ALS and no longer can sing. Amyotrophic…

Patrick Quinn, who is best known for co-founding the Ice Bucket Challenge, had died after a battle with amyotrophic lateral sclerosis (ALS). The aforementioned Ice Bucket Challenge was viral campaign that brought awareness to ALS, which is commonly known as  Lou Gehrig's disease. He was 37. The Quinn for the Win Facebo…

Three-time Tony Award nominee Rebecca Luker announced today that she’s been diagnosed with amyotrophic lateral sclerosis, drawing a wave of support on social media from the Broadway community. The 58-year-old Luker, whose husband, actor Danny Burstein, currently stars in Moulin Rouge! The Musical, posted the news on…

EXCLUSIVE: There have been a couple of feature doc acquisitions to report. First up, Zeitgeist Films and Kino Lorber have acquired Lisa Immordino Vreeland's feature documentary Love, Cecil about production designer Cecil Beaton (Gigi, My Fair Lady). The film premiered at 2017 Telluride Film Festival. It will get a…

UPDATED: Amazon Studios and Open Road said today that Gleason will open on July 29 in North America. PREVIOUS EXCLUSIVE: Amazon Studios is closing a deal for all U.S. rights to Gleason, one of the most acclaimed documentaries to premiere at this year’s Sundance Film Festival. The docu focuses on Steve Gleason, a…

IMG, the sports and media business acquired by WME last year, is stepping up to finance and market a full-length feature documentary about former New Orleans Saints football player Steve Gleason who was stricken with ALS at the age of 34. Joining IMG in The Gleason Project is Seth Gordon, the producer of the Academy…

One of the key challenges in creating The Theory of Everything, the biopic about physicist Stephen Hawking and his wife, was figuring out how to accurately portray the effects of the neurodegenerative disease that Hawking contracts as a young man, and continues to live with even today, says the film’s director James Ma…

It is a viral campaign that has washed across the Web, and Hollywood, as celebrities dump buckets of ice water over their heads to raise money for research into amyotrophic lateral sclerosis and support for families and victims of the neurodegenerative disease. Within a couple of weeks of its launch, the initiative…